Manchester Declaration On eHealth: More Training, Better Choices

MANCHESTER DECLARATION Balance – TRAINING – Choice E-Doctor Science Debate @ ESOF 2016 Organized by EUSJA & TELI These three words characterize the outcome of the ESOF Science Debate about […]

logo-esofMANCHESTER DECLARATION
Balance – TRAINING – Choice

E-Doctor Science Debate @ ESOF 2016
Organized by EUSJA & TELI

These three words characterize the outcome of the ESOF Science Debate about edoctors and whether we can trust them. In our perception of benefits and disadvantages, we first of all need a better comprehension and knowledge about electronic health. This should be provided by profound training and overall education. Only with these means, Europe’s citizenry is apt to make better decisions and choices on how to proceed in this innovative field of health care.

Jens Degett, EUSJA President (c) Goede

Jens Degett, EUSJA President (c) Goede

To reach this assessment, the session had started out with impulses and testimonials of experts and stakeholders, across the board, from health professionals, therapists and selfhelp representatives, sceptics, ethicists and philosophers. The presented pros and cons such as:

More precise and faster diagnoses as a result of improved data analysis and better access to data, efficient monitoring of the patients with smart phones, improving the condition of mental health patients by means of helpful biofeedback; but also, on the dark side, risks about the deterioration of personal contact and confidence between doctors and patients, confusion and misinformation along with data insecurity and loss of solidarity.

Groups around roundtables were formed to discuss the concerns. One of the main recommendations was that all stakeholders should be better informed and trained. This empowers them to take advantage of the opportunities, which technology is providing nowadays. This could lead, as a follow-up to joint activities, in which the research community (Information and Communications Technology ICT, Health) and the public can engage.

Roundtable Discussion (c) Goede

Roundtable Discussion (c) Goede

Also the groups discussed the trust and ethics issues stemming from the use of applications and systems. There were worries about the use of the personal details and heath data from organisations around health institutions (hospitals) and that other affiliated bodies (e.g. insurance companies) could take advantage of them.

A balanced use of these applications as well as platforms are needed. They could help local communities – especially rural and isolated regions – to provide the required health care and blend with traditional ways. Apart from the right balance, people must have a choice, if they want to use this technology or not. Last but not least, they must understand the positive and negative aspects of this choice and consider them in their decision. Again, this can only be realized by more information and training.

Speakers of the roundtables present results (c) Goede

Speakers of the roundtables present results (c) Goede

The session was organized and moderated by the European Union of Science Journalists’ Associations EUSJA and the German Science Writers TELI. The results are being submitted to the European Commission EC for consideration and implementation. Two years ago at ESOF 2014 Copenhagen, EUSJA and TELI had a similar debate on chances and risks of nano technology, with the favorable response of the EC.

 

Contributors to the debate:

  • Jens Degett, EUSJA President, Copenhagen
  • Carl Johan Sundberg, MD, PhD, Lecturer, coordinator Science & Society, Karolinska Inst. Stockholm
  • Kay Sundberg, PhD, lecturer, Dept. of Neurobiology, Care Sciences and Society, Karolinsky Inst., Stockholm
  • Hanns-J. Neubert, EUSJA President emeritus, Science Journalist, Sciencecom, session co-organizer, Hamburg
  • Viola Egikova, President Association of Science Writers and Science Journalists INTELLECT, Moscow
  • Wolfgang C. Goede, former EUSJA Honorary Secretary, vice president German Science Writers TELI, session co-organizer & moderator, testimonial on behalf of Munich and German Anxiety and Depession Selfhelp Organization MASH/DASH, Munich
  • Ilse Furian, Feldenkrais-Instructor, Hamburg
  • Réné von Schomberg, PhD, Philosopher, ethics & responsible innovation, European Commission, Brussels
  • Menelaos Sotiriou, Science Communicator, Science View, Athens

Links

ESOF Session Abstract ->
http://www.esof.eu/the-programme/event-information/should-we-trust-edoctor.html

Session Report TELI Wissenschaftsdebatte ->
http://www.wissenschaftsdebatte.de/?p=5708

For more balance, information, transparency, see also recommendations of German Health Ministry ->
http://www.bmg.bund.de/ministerium/meldungen/2016/studie-gesundheits-apps.html

Session Video ->
https://www.youtube.com/watch?v=wnc3_7Vcaeo

ESOF 2014, Copenhagen Declaration on Nano Technology ->
http://www.eusja.org/kopenhagen-declaration/

About Wolfgang C. Goede

Wolfgang C. Goede is a science journalist based in Munich, Germany. He is a board member of the German Association of Science Writers TELI.